How Should the Family of a Disabled Individual Design an Estate Plan? (Part Two)*
by
Lisa Nachmias Davis
Davis O'Sullivan & Priest LLC
59 Elm Street, Suite 540
New Haven, CT 06510
203-776-4400
Fax 203-774-1060
davis@sharinglaw.net
first drafted 1998 -- updated 1/11/23 !

    Part One of this article discussed the ways that the family of a disabled individual could design an estate plan to include a "supplemental needs trust" (sometimes called a "third party" special needs trust) to supplement the disabled person's entitlement benefits. But what if planning has not been done, and funds pass to the disabled individual outright? Or what if the individual is about to receive a personal injury settlement or award? Or what if the person didn't need benefits but suddenly does, and has to reduce assets?

    First, a word about liens. While Connecticut has got rid of many "liens" to recovery benefits during a person's lifetime, it does still have the right to do so in some cases, particularly when a personal injury is involved, where the State's lien includes costs of medical assistance (Medicaid) related to that injury. However, under federal law the State can not require further repayment of Medicaid benefits provided during the disabled individual's lifetime, but must wait until the individual's death to file a claim.  (An exception that allowed the state to place a lien on the home of a nursing home resident was repealed in 2021.) Nor does the federal government impose a payback lien of any kind with respect to the programs it administers (Social Security, SSI, and Medicare), with the possible exception of disabling injuries subsequently compensated by a workers' compensation award.  So it's not that the state is going to "take away" anyone's inheritance or personal injury award or other windfall. The issue may only be that if retained, the assets will affect continued eligibility.

    Second, a word about income. An inheritance or injury award that is received while an individual is on Medicaid is considered "lump-sum income" that may affect benefits for at least six months. The individual may sometimes avoid this problem by going "off" Medicaid before payment is received. Other state and federal benefits have their own timing rules.  (By "Medicaid" I mean "Husky  C" as it is called in Conenecticut. There is no such problem with Husky D under the Medicaid expansion, a/k/a Obamacare.  Husky D also has no asset limit so that receiving an inheritance is usually not a problem.  There is also no problem with QMB, which pays the premiums, copays and deductibles of low-income people on Medicare.)

    Once these issues have been resolved, however, families should know that the "OBRA '93 Trust" or "payback" trust, also known as a "first party" special needs trust, can preserve the remaining funds in a trust for the individual's supplemental needs during lifetime without further affecting Medicaid benefits.

    The requirements of an OBRA '93 or "first party" special needs trust are simple: (1) established for the lifetime benefit of one individual under age 65 (2) who is either blind, or disabled as defined by the Social Security laws (receipt of a government disability benefit should satisfy this requirement, but is not required), (3) with pay-back of the state Medicaid lien required at death. In addition, the trust may only be established by parents, grandparents, courts, or "guardians" (construed to include conservators), and since December 2016 only, by the disabled individual directly.

    In deciding whether to establish an OBRA '93 trust with the disabled individual's funds, the disabled beneficiary's specific needs and the effect of the trust on all of the individual's entitlement benefits must be taken into account. For example, establishing a trust while the beneficiary is receiving cash assistance within two years of application may result in a lengthy period of ineligibility from receiving this benefit. If cash assistance will be important to the beneficiary, it may be foolish to preserve Medicaid eligibility while destroying eligibility for state cash assistance, and other options must be considered instead.  "Cash assistance" is the benefit that pays for some group homes, if licensed as "residential care homes."

    In the context of personal injury lawsuits, interaction with available settlement options such as "structured settlement annuities" must also be considered. Once such an annuity is established, it usually cannot be assigned, and as a result, the OBRA '93 Trust option is lost. However, if the court directs payment to the OBRA '93 Trust, or if the settlement is in a lump sum, the OBRA '93 Trust option remains open. It is important, therefore, to plan from the beginning when damages for a personal injury are involved.

    The rules affecting entitlement benefits for disabled individuals are complex. Attorneys who handle estate planning are not always familiar with these rules. While the OBRA '93 Trust can provide a significant benefit when appropriate planning was not done, or when no planning is possible (the personal injury situation), it is essential to obtain both good estate and tax planning and good entitlement planning when arranging for an OBRA '93 Trust.

DISCLAIMER:  THIS INFORMATION IS NOT PROVIDED AS  LEGAL ADVICE AND CREATES NO ATTORNEY-CLIENT RELATIONSHIP.  NO ENDORSEMENT IS INTENDED BY ANY REFERENCES HEREIN.  PLEASE CONSULT YOUR OWN LEGAL AND FINANCIAL ADVISORS BEFORE TAKING ANY ACTION. 

I can only provide general information, and will not provide advice about a particular case without a formal engagement. Writing to me does not create an attorney-client relationship.

*Revised 8-2-09; 9-4-20